In October 2010, Justine’s Dad was diagnosed with Motor Neurone Disease (MND). 25 months later on 28 November, 2012 he lost his very brave battle.
MND is a very cruel and devastating disease that causes the nerve cells (neurones) controlling the muscles enabling us to speak, breathe, swallow & move around to degenerate and die. Without the neurones to send messages to these muscles, the muscles cease to function.
“In my Dad’s case, he had a type of MND called Bulbar Onset. He lost his ability to speak quite soon after diagnosis, his head dropped, he lost use of his right arm and the inability to swallow properly (amongst other things). Dad’s decline in the month or so prior to his passing was quite rapid and although tragic, was a blessing. He was no longer trapped in the body that imprisoned him.”
There is no known cure or effective treatment for MND at this time. Researchers are making progress and this is exciting but they need funding!
Motor Neurone Disease Association of NSW is a wonderful organisation who provide support for people living with MND, their carers and families. Your donation is extremely valuable and will be put to excellent use by them.
Justine will be taking part in the Canberra Walk to d’Feet MNG on the 6th of April 2014. Please help Justine raise as much money as possible for research and support!
Donate here: Team Ray ‘I did it my way!’
Loading ...
