Local Harrison resident Justine and her 4 year old son and unborn child lost her father and their grandfather 12 weeks ago to Motor Neurone Disease (MND). MND is the name given to a group of diseases in which the nerve cells (neurones) controlling the muscles that enable us to move, speak, breathe and swallow undergo degeneration and die.
MND is an uncommon, but by no means rare, disorder. It occurs at similar rates in most countries of the world. It is estimated that there are about 1,400 people diagnosed with MND in Australia. Slightly more men than women are diagnosed with MND, most commonly in the 50 to 60 year age group. However, MND may be diagnosed in adults at any age. The average life expectancy from diagnosis is 2-3 years.
When asked about this disease Justine said “This is the most insidious disease I have ever encountered and there is still NO CURE!”
“Dad was always very strong and took his role as protector of his family very seriously. To see such a strong man lose his ability to speak, swallow, hold up his head and use his right arm was very devastating for myself and my family.” Justine shared about her father.
Justine and her husband are promoting the annual Walk to d’Feet MND in Canberra (hosted by MND Association NSW) which is being held on 24 March 2013. Further details may be found via the following link Walk to d’Feet Motor Neurone Disease in the ACT.
Justine told us it is her very strong desire that a cure be found for MND so that other families do not have to suffer. This is only possible with awareness and funding. Please help Justine support this extremely worthy cause by making a donation via her donation page here at Team Ray ‘I did it MY way!”s Fundraising Page……every little bit counts.
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