Last month we were privileged to attend the groupOne Splendiferous Entertainment Extravaganza event for Dainere’s Rainbow Brain Tumour Research Fund.
This annual event is held shining a spotlight on paediatric brain cancer, the number one disease killer of children in Australia. This evening was dedicated to all children diagnosed with paediatric brain tumours and wish to remember and honour those children who have lost their courageous battles, those who are presently fighting and those who are survivors but have been left with devastating side effects from this horrendous disease.
We are pleased to announce that this single event raised $39,116 with 100% of the funds going directly to crucial research at Sydney Children’s Hospital Kids Cancer Centre. Associate Professor David Ziegler and his research team use these funds to give every single child diagnosed with paediatric brain tumours; the number one disease killer of children in Australia hope for improved outcomes, individualised treatment, access to clinical trials, treatments with less devastating side effects and working towards a cure becoming a reality.
An event such as this would not be possible without the treasured and valued support and generosity of numerous businesses and individuals in our Community who we wish to express our deepest and humble gratitude to: The truly remarkable and charitable Major Partners for this Event: Group One, Tatts On Tatts Off, Qcity Transit, Rolfe Property Services Pty Ltd, Regional Wholesale Fruit and Simeco Electrical Contractors.
We also acknowledge the kind hearted and phenomenal Dainere’s Rainbow Corporate Community Partners; Transit Graphics and Qcity Transit and all the amazing Community Partners.
Heartfelt appreciation to Mr Michael Bower who was the magnificent Host for the evening, Jeremy Maher from Harcourts Brindabella the evenings auctioneer extraordinaire and the gracious and amazing Connlaith the Community Fundraising Coordinator from Sydney Children’s Hospital Foundation.
The Splendiferous evening was all about Entertainment. Enormous accolades and gratitude to Jay and The Dragonflies, Badra Dancers, Greg Kimball, Deborah Lane Balloon Modelling, Anne’s Face Painting and our special guest Garry ‘Canberra Elvis’ Buckley for sharing his incredible talent for a night to remember.
We thank the talented photographer Michelle from AHC Studios for capturing the event. You can view all the photos here. Thank you to the marvelous team at Eclipse Lighting and Sound for their creative and generous contributions to making the evening splendiferous.
To the hardworking and magnificent Ainslie Football Club team especially Angela and Leanne for their planning, organisation, diligence and incredible hospitality we thank you.
We encourage you to save the date of 16th June 2018 for next years event which will be Dainere’s Rainbow Spooktacular Gala Dinner at The Abbey in Gold Creek.
In the meantime you can support this cause by sponsoring the City2Surf Run For a Cure fundraiser where Jarrett Anthoney and Mark Scarborough of My Gungahlin is taking on this 14km challenge next month. https://city2surf2017.everydayhero.com/au/dainere-s-rainbow-1
Jarrett Anthoney: “When people hear the word “scary” or “spooky” they may first think of monsters, clowns, maybe even sharks. Or perhaps one’s mind would go to what they fear; a fear of the dark, a fear of heights, a fear of small spaces or a fear of spiders. All these things I have mentioned and more are indeed things which can easily scare people. Yet people seem to so easily overlook something so vicious and cruel in this world which is truly terrifying.
Imagine you are a child again. Now imagine persistent vomiting of a morning, poor balance and co-ordination, unexplained weight loss or gain and abnormal eye movements and blurred or double vision have all become a part of your every day. Imagine getting told by a doctor that these are all some of the symptoms of a brain tumour and that you do in fact have a brain tumour. Imagine going through long surgeries and endless chemotherapy and radiotherapy treatments which give you both short and long-term side effects and not to forget the never-ending blood transfusions and tests. Imagine after all these treatments and procedures still being told you will not survive and that your brain tumour will be taking your life seemingly before it has even begun.
If you are like me, it is impossible to even begin to imagine what that is like. Through the 4 years Dainere battled with her brain tumour, I watched her in awe as she went through every day, no matter how bad she was feeling, with such courage, strength and always a smile on her face.
Brain tumours are the most common form of solid tumours amongst children. Brain cancer kills more children in Australia than any other disease. The survival rates for brain cancer are low and have hardly changed in over 30 years. This is what is truly terrifying. I don’t think anybody could not fear the facts of childhood brain tumours. But I am not saying all this to scare you, I am here to remind everyone how important it is to raise awareness and funds for Paediatric Brain Tumours.
So, if brain cancer likes to scare us, why can’t we give it a scare back for once?! Make sure you come along next year because you will not want to miss our Spooktacular dinner. Feel free to dress as creepy, kooky, mysterious or spooky as you like, to raise awareness and funds to work towards scaring brain cancer away! On June 16th 2018, come along to the Dainere’s Rainbow Spooktacular Gala Dinner”.
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